Thank you, Dr. Perrone
Dr. Perrone is a nephrologist who specializes in PKD. His words about my book, The Reluctant Donor, mean so much to me. It means I honored those who went before me . . .the brave men and women who taught me courage. Here is what Dr. Perrone wrote: ‘The Reluctant Donor should be required reading for anybody who works with kidney disease patients, at any level. I provided this wonderful book with brand new nephrology physicians in training. They were profoundly moved. In the present era, we take dialysis and transplantation for granted, i.e., as routine medical procedures. It wasn’t always so. The integration of the incredible and courageous histories of members of the Ruff family, at a time when dialysis and transplantation were not standard medical procedures reminds of the progress we have made, but there is so much more to do. Highly recommended as required reading.’ Ronald D. Perrone, MD Nephrologist Tufts Medical Center...
Read MoreThe Word ‘Cadaver’
Yesterday, on ABC’s The Bachelor TV show, an insensitive comment was used about a ‘cadaver’ donor. The word “cadaver” should not have been used. Many donor families – people with a family member who died and donated his or her organs after death – are upset at the use of the word ‘cadaver’. Because each family’s loved one was a person, loved and cherished, and not just a dead body. Many donor families are outraged. My mother received her transplant in 1988 and the word ‘cadaver’ was used. That was the word used by the medical community back then to indicate the organ transplanted was from a deceased person. Later, it was considered insensitive. Mom stopped using the word “cadaver” too, although any donor who has received a transplant never thinks of their donor as a ‘cadaver’ or a dead person. They think of them as their angel. Mom’s donor was the first person she wanted to meet in heaven after she paid her respects to God. Words. Yes, words can hurt. But, let’s not get hung up on words. Why not get hung up on the fact that over 120,000 people are waiting for a life-saving organ transplant? To be an organ donor in the event of sudden or unexpected death is one of the noblest things anyone can do for their fellow man. Become an organ donor! I promise someone will call you an...
Read MoreCathy
I’d like to dedicate my first blog to the memory of someone who helped me along my journey to become a living donor. Her name is Cathy. She helped me more than she probably ever knew. I had hoped she would understand and see what she did for me when she read my book. But, it’s not going to happen that way. Most of life turns out like that – different from the way we expect it to be. Cathy died in her sleep last week at the age of forty-six. Do you suppose they read blogs in heaven? I know with every fiber of my being that is where she is now. There were many wonderful qualities in Cathy. One of the most astounding qualities she had was the quiet dignity I saw in her when I poured out my worries to her while I tried to decide if I should be a living donor. Years ago, Cathy donated one of her kidneys to her brother, who suffered from a kidney disease different from our family’s genetic polycystic kidney disease. Sadly, Cathy later developed the same disease as her brother. When she needed a kidney, her husband, Rich, gave her one of his. My sister, Janice, put me in touch with them when I was doing all that whining and worrying on whether to be a living kidney donor. Cathy didn’t whine once when she told me her story. With quiet courage and not an ounce of self-pity, Cathy told me about her challenges. Rich and Cathy’s love for each other and their stoic bravery stopped me in my tracks. There is a comical scene in my book about Rich’s experience with a nurse trying to get him out of bed after his surgery to become a living donor. Through the years, we have gotten to know them better because of the National Kidney Foundation’s US Transplant Games. Athletes with transplanted organs and/or tissue compete against each other. The US Games have teams from various states. Cathy and Rich were on Team Illinois with the rest of my family. Team Illinois became one big family, looking out for each other, helping each other, cheering for each other. Our team uniforms were orange one year. Cathy, held up her bright orange shirt, and exclaimed, “I’ll look like a pumpkin!” Cathy, a seasoned athlete, reassuring my sister, JoAnn, who was nervous as a new athlete in her first Games. Cathy, fussing over my elderly dad, always thoughtful and considerate. Cathy, a devoted friend of my sister, Janice. Cathy, who sent in a nomination for me for the Living Donor Council. Cathy, who JoAnn proclaimed as our adopted sister. Cathy, may you rest in peace where there is no disease, pain or sorrow. God bless you for your goodness....
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